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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, JE! Its great having long term survivors join our group. Its not often a survivor joins who went thru everything prior to this site being created. Treatments havent changed much for this awful disease except for the IMRT radiation being the norm now. Im sure you will find some interesting reading and maybe make some posts in the new section for long term survivors and issues. Brian has quite a story. Here is the link so you (or anyone else who is interested) can read about it. http://oralcancerfoundation.org/about/brianhill.htmhttp://oralcancerfoundation.org/about/key-staff.htmCongrats on being a long term survivor!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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