Welcome to OCF, JE! Its great having long term survivors join our group. Its not often a survivor joins who went thru everything prior to this site being created. Treatments havent changed much for this awful disease except for the IMRT radiation being the norm now.

Im sure you will find some interesting reading and maybe make some posts in the new section for long term survivors and issues.

Brian has quite a story. Here is the link so you (or anyone else who is interested) can read about it.

http://oralcancerfoundation.org/about/brianhill.htm

http://oralcancerfoundation.org/about/key-staff.htm

Congrats on being a long term survivor!!!

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile