Hello. I'm wondering if anyone else who has had a recurrence has undergone Erbitux on one day of the week, to then end the week with Cisplatin and Taxotere? I have an inoperable tumor at the base of my tongue and on my larynx. We are going this route for a few weeks/months, then possibly doing proton beam radiation at ProCure in Somerset, NJ. I then might be doing a clinical trial drug once the tumor has gone down in size. Apparently this drug has been promising, but it takes a few months to kick in which is why we have to start chemo to stop the very aggressive tumor growth.

This is all so overwhelming, not the having to do the chemo and more radiation, again, although I am by no means looking forward to it. I am just trying to stay positive through all of this, for myself, but also for my family and friends. The kids are only 4 and 6 and don't really know much more than I need more medicine to make the boo-boo go away. I know that the percentages are not in my favor, and I don't go around saying this to people who ask, but I know. I hope this does work and that it goes away but I know realistically it may not. I'm not being negative when I say that. I am just acknowledging the facts that are out there. Do you know what I mean?

10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away