Thanks, And I will ask about the suction.

Yes, the dosage is through the roof. Unfortunately, my brother had decided after getting diagnosed to take alternative treatment (mostly prayer, crystals and drum circles). So by the time he called me, he was stage four and his floor of mouth tumor as over 4.5 cm. So he was already in excruciating pain and the patches were started by the end of week one of treatment. He was as high as 175 on the patches!! They were carefully weaning him down and got to 50 last week, but his pain shot way up and he was taking 1.5 mg Oxy four times a day without true relief. So much to their chagrin, they brought him back up to 75 and he is now getting relief.



His symptoms are just dissipating way slower than everyone expects. So, hopefully the gunk, thrush, pain etc will go away soon and we can move forward to the scans next month to see if the treatments worked.


AWW, Brother of Dave, 60
Pre-canc 10 years ago
Biopsy Dentist 10/12
Stage 2 SCC 2.5cm
no action
5/13 to DanaFarber
Examined by Surgeon, MO, RO
PET, CAT
Stage T4, 4.5cm, no METs, or lymph nds
Started treatment 6/17 - RT 5x/wk, Csptn 1/wk, for 7 wks - will end 8/5
PEG since his first week.
Treatment ended 8/5
Scans scheduled for 10/30, with FU appointment 11/6
11/1 - Treatments didn;t work. Tumor continues to grow.