So my brother ended treatment on 8/5 and we are beginning his 9th week out.

But his symptoms are not getting any better. He started cutting back his pain meds but he could only go so low before the pain kicked up and he had to back up to 100 on the fentenyl patches. His neck is shot from holding his head weird but he is in therapy for that and for speech and swallowing. In the meanwhile he is still 100% reliant on the PEG.

His biggest complaint - and reason for delaying eating - is the thick secretions. They haven't slowed down one bit. The doctors say to give it time, but he is pretty frustrated (to say the least). They all originally said 2 to 4 weeks, then 4 to 6, but we are beginning week 9.

Has anyone else gone this long with the secretions? I guess I am taking a poll - how long after the radiation/chemo did your secretions stop?

Thanks and God bless.

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