Just an update- steroids have been reduced by 1/2 last week and he's been doing everything at his normal pace again. No more aggression and he still has a "normal?" amount of energy. He's also eating better and getting better rest as he's not as wound up anymore. Huge change. I feel really fortunate for this advice.
CG to husband-
4/2013 - lymphoplasmacytic lymphoma & scc hard palate dx
7/2013 Removed tumor from palate + neck dissection T3NO. Has palatal obturator.
4/2022- lymphoplasmacytic lymphoma mutation to Bing Neel syndrome, BTK inhibitor for tx
7/2023 - lung cancer, resolved with radiation
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