OP Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | Hey paulB, I am going to ask for a platelet infusion. They are usually reluctant in giving them except in emergencies. Due to the fact that the more you get the less effective and shorter duration of increased platelet counts. But I would call this a possible emergency. I would think that my doctors would want to avoid another bleed. As it is like starting the healing process all over again. it has been 8 days since the last bleed and I can feel the pain of the scabs starting to come off. I am constantly drinking ice cold water to try to constrict the blood vessels. and to keep the scabs in place as long as I can. I feel like my eyeballs are floating and urinate only the clearest of pee. so I am most def. not dehydrated. But I must eat more. My oral health is suffering, as I am afraid to really get in there to brush properly. Thank you for your response. Are you ready for another RND? Best of luck with that. you are directly in the path of my positive meditation against the beast! take care...Shawn U.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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