I had a lot of lymph and fibrosis start to really set in after my ND on 9/11. and during that ND I had my left tonsil out. Well the pressure got to be too much and I had a bad hemmorage from tonsil bed. I was taken by ambulance to the ER. where they took me into surgery to coterize the wound.It seems as if the lymph fluid that was clogging me up had drained away with all the blood from the hemmorage. And my neck was a lot loser. well 7 days after ER had stopped the bleeding. And the lymph is back almost as bad as it was the last time right before the bleeding! And I am worried that I will have a reccuance of the bleeding due to the pressure being back.(I have low platelets that make it easier for me to bleed in the first place.) I don't want to start over again. I am afraid to move. I think I may have posted this before but not sure. (pain meds). I was thinking that they could give me some platlets to get me through the healing process. I lost over five pounds of blood last time. Oh and I think this is to PaulB. 33 out of 36 were indeed found to be cancerous. I verified it. My prognosis is not good at all no more surgery is possible. No more radiation is possible. so that leaves Med. ONC. And citplatsin is out due to hiv/aids. so they have offered me Erbitux again. but this would be in their words more palitive approach. buying time. until some mirical comes up. WE are all on the lookout for studies. I just want to be out of the clear of this looming bleeding situation so I can get on with the rest of my life. And find something that is curative. sorry for all the typos Shawn U


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.