Tina, I know this waiting for anything definitive is just awful. At this stage though you are borrowing sorrow from tomorrow. This could well be nothing serious. I am praying that is so. You know all the helpful advice to keep busy and try to think of other things. When I was in this position I also found a blue sleeping pill a must to get a good nights sleep to avoid over thinking everything.
Know that we are thinking of you and keeping our thoughts positive.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!