 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | The truth is..it ain't cancer till they can prove it. Worry robs you of the enjoyment of today and your 5 year old. Anxiety causes more stress and can lead to more problems. Biopsy will be about the only sure diagnostic tool at this point. Keep pushing but please take a breath and enjoy today. It will be gone by tomorrow and will never return. You have lost many, many today's since May. You have a gift before you and should this be cancer, every day up till the diagnosis you have been cancer free as far as you know.
Just my opinion.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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