Since we are on this topic, OCF treats everyone's information with a serious eye towards protecting them. That is why we ask people not to use the real names here (I am an exception) only provide direct contact information to people that you actually get to know here, not to anyone that contacts you from the board. The reason that we have a private message function is so that you can take messages intended for one person, and safely communicate with them, still maintaining your privacy and real identity. Notice that when you signed up you have an option for a visible email address and your real one both� that is so no automated web-bot that wanders around sucking up email addresses will ever get your real one. Most importantly, Christine David and I almost daily block some spammers from our forums directly stopping their IP address and the email that they register with. Please report to one of us if you get any PM's from someone that wants info from you, wants you to buy something, suggests to you that you go to some particular web site for whatever reason, or you find invasive to your privacy in any manner.
Also for those of you who use Facebook, which has its own inherent privacy issues and dangers, I have a public identity there as does the foundation. Please like the OCF page so that we can stay in touch with you with new information; and if you care to, friend me with a note that says OCF in it. I have 1600 oral cancer friends on FB, and I routinely pass on important science articles and the like to them. Remember that Facebook unlike OCF, is in the business of selling everything that they learn about you. Your information at OCF is never sold to others or shared. We get offered sizable amounts of money to do so, but will never engage in that kind of behavior.