Hello all, I have a MND. coming up on 9/11. (of all days). And when I asked my ENT he said that the prognosis is guarded. When asked why this is so his reply was, "He wont know the extent of the surgery until he can see inside me. The area that needs to be worked on is a previously irradiated area. (last rad session was 2/13). Now to my point, Is it not my right to get a clear picture of what is going on. I feel like they are telling me that all will be well and im sure this is what some people want to hear. But I want it straight. So I can plan my life accordingly. I know he cant give me exact odds but he is so vague. I know that RSCC with MET. to the lymph node superhighway is not good at all. any thoughts or impressions or corrections will be greatly appreciated. Shawn U.

. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.