| Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | Hi, you are doing the right thing getting it checked out.
It may not be too bad. I went in to surgery to remove an ulcerated sore on my tongue, and that is how we discovered a tumor. I hear most tongue ones don't really hurt at first. But it wasn't too far along, and my subsequent tests and surgeries have been just in case. Hopefully yours, if it is cancer, will also be early!
Just think, all the meds you are already on have probably helped fight any potential cancer. Hold to that positive thought.
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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