 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Methadone blocks the NMDA receptors that cause you to feel intense nerve pain. I had a few years of the worst imaginable pain like head to toe toothache. As my muscles atrophied my scapulas started moving all over. The right one came around to the rib cage and I couldn't breathe because the rib cage wouldn't expand. The methadone made it better but ischemia set in and my body started disconnecting from the brain. I started losing all feeling and was diagnosed thoracic paraplegia. The end was in sight but I guess it wasn't time. I had to wean to live.
No pain meds this year!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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