| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Whatever anyone tells you about their Tx please remember that everyone can react differently.
So no chemo is planned?
Most likely with radiation:
You will loose most of your taste early on;
Your taste wioll mostly come back but may take all of 2 years post Tx;
You will develop swallowing difficulties and must depend upon a liquid diet for your calories;
You will secret a thick mucous towards the end of Tx that can last a few weeks but will stop;
You will develop dry mouth as your saliva glands suffer from the radiation damage;
Your dry mouth will improve but, like your taste issues, may take all of 2 years to recovery to their new level;
The few weeks POST Tx are usually the worst time we all have so just be prepared;
Your recovery can take all of 2 years with the first few months being the most challenging and the first year worst than the 2nd year.
That said there are a few things I would recommend:
Get with your dentist and make sure they know you are about to undergo radiation;
Get your TSH tested pre radiation and record that number in case your thyroid craps out post Tx;
Do start eating and eating and eating everything in sight especially your favorite foods;
Do try and consume 2500 cals and 48 oz of water each and every day starting NOW;
Do write down any question you think of and ask your docs and us;
Do keep a positive attitude as you will be able to finish this Tx and you will walk out of that tunnel and you will recover from this Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
Entire Thread
|
[b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 02:48 PM |
Re: [b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 02:49 PM |
Re: [b]New User, SCC T2 NO[/b]
| Cheryld | 08-18-2013 02:54 PM |
Re: [b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 03:27 PM |
Re: [b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 04:21 PM |
Re: [b]New User, SCC T2 NO[/b]
| davidcpa | 08-18-2013 04:02 PM |
Re: [b]New User, SCC T2 NO[/b]
| Cheryld | 08-18-2013 04:13 PM |
Re: [b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 04:46 PM |
Re: [b]New User, SCC T2 NO[/b]
| fishmanpa | 08-18-2013 04:15 PM |
Re: [b]New User, SCC T2 NO[/b]
| Denise13 | 08-18-2013 04:43 PM |
Re: [b]New User, SCC T2 NO[/b]
| debandbill | 08-18-2013 05:50 PM |
Re: [b]New User, SCC T2 NO[/b]
| davidcpa | 08-18-2013 10:59 PM |
Re: [b]New User, SCC T2 NO[/b]
| ChristineB | 08-19-2013 01:54 AM | |
Forums23 Topics18,261 Posts197,168 Members13,351 | Most Online1,788 Jan 23rd, 2025 | | | |