Hi Cathy; My primary was the base of the tongue and there were mets to several nodes in the neck. I finished radiation in mid August and have suffered all the usual low immune system problems that are part of the process. I do however continue to lose weight, but as I taste more the appetite will return.
I am dry as a bone with all saliva glands blasted to smithereens with the bilateral rads.
Your words about one month of recovery for every week of rads is such a helpful piece of info. That "perspective" thing can sometimes be so elusive. My major problem is the radiating neck pain, and the hopeful message about neurontin kicking in eventually has been received with joyful expectation.
Thank so much for all your input, I hope to be a good contributor to the encouragement that is found at this site.
Bless you all.