OP "OCF Kiwi Down Under" Supporting Member (50+ posts) Joined: May 2013 Posts: 63 | We started the second phase of treatment (first being the surgery) for this blasted thing two days ago on Tuesday 9th July. The plan is 3 rounds of chemo (cisplatin) given over one day, each 3 weeks apart along with concurrent radiation - 60Gy over 30 treatments.
The first day was a long one in the hospital - in at 7.30am and not leaving until 4.15pm . They had some trouble getting the line into my hand (4 attempts) but once it was ready the rest was just sitting around waiting. Nothing really to worry about at this stage.
Didn't sleep very well that night as felt a bit queasy and had a lot of things racing through my mind.
Day 2 I visited the nurses when I went in for my RT and they added another anti-nausea med to the mix which has helped for sure. Still have nausea but it's tolerable now.
Day 3 (today) and my third RT. The scars on my neck are redder and my neck is slightly pinker too. I'm using the Aqueous Cream, gargling with salt/bicarb soda and eating/drinking at this normal stage is normal.
We have two kids (6 year old girl and 4 year old boy) and they both have colds and I'm now getting a sore throat too. Better now than later in the treatment though.
3 treatments down and only 27 to go... I must say that I'm nervous about what is to come as I know it gets pretty difficult. What else can you do though but battle through it... hearing all your stories helps with the courage.
2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+ 28 May 13 - Pharangoscopy & tongue biopsy 29 May 13 - BOT Surgery & right ND (lvls 2-5) 31 May 13 - Hemorrhage, emergency trach, critical care BOT clr mgns, 9/67 nodes & extracapsular extension Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May
|