OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | I did go to one CCC and I would never go back to that one. My next second opinion may yield better results. Right now I trust my docs, but even the two tumor boards could not agree, which says this really is small and borderline. They have no real evidence either treatment is necessary. Both are preventative. So I am just learning what to REALLY expect from this option.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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