I did go to one CCC and I would never go back to that one. My next second opinion may yield better results. Right now I trust my docs, but even the two tumor boards could not agree, which says this really is small and borderline. They have no real evidence either treatment is necessary. Both are preventative. So I am just learning what to REALLY expect from this option.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery