Ok, Monday morn I will be calling the ENT since I don't have another appointment with him until August 27th.
David, I have a PEG. I stopped using it because I was doing pretty good, I had went a whole week and gained back one pound. That is what is confusing, I don't understand why I am going backwards with my swallowing. It seems 2 weeks ago it was difficult but I could swallow with no fluids, 1 week ago I had to drink fluids to get food down, the last few days I choke on every bite. I really feel like I am going backwards in my recovery, more pain, more difficulties swallowing, less sleep, and I am loosing weight again. Maybe I pushed it to hard but I really want that PEG out! I kind of feel like its a rope holding me down and when it is removed I will be free again.
I have also been doing yard work again, mowing an acre and half, weed eating, trimming bushes and cutting down some hedges. Is it to soon for all of this? Am I doing more harm than good? I have been spending a couple hours out in the yard a few days a week for the last few weeks. Also back to work about 30 hours a week. I was tired afterwards but I felt OK, felt good to get off my butt. This week everything just went backwards. I ache, I am exhausted, I don't understand.