Tina, I completely understand what you mean about the shower. My left arm is still very limited in motion while I'm healing, so I've had to adjust a lot of things I do. Sometimes I forget my arm isn't even close to the strength it was and I go to pick something up, which just results in me almost dropping it. Everything, for now, is just all about adjustments, but I too always tell myself to find a way. I hate being a nuisance to anyone and I hate being so dependent on anyone, so I figure out ways to do everything I can without help. The only problem I run into now is becoming tired so easily, but that's expected. My speech therapist stopped by today and said since I'm having no problem swallowing that there really is no more need for me to see her anymore. To just keep swallowing what I can to build up the muscles, and in terms of talking just move my tongue around as much as possible to build up the muscles. Of course the obvious of talking as much as possible, as well. I always laugh when people reassure me that I'll get through this multiple times in a span of two minutes because I've been saying that from day one, I realize it's kind of their way of reassuring themselves of it. I am here for you, and anyone in that matter, if you ever need to talk or vent or anything of the sort.

Rosemary, I actually had no flap put in, only sutures. My tongue has been healing beautifully without any problems, and my doctors also told me it will regenerate over a span of 5 years. Obviously not completely, but every little bit helps.


Josh, 24, don't smoke/drink

5/29/13 Biopsy
6/3/13 DX stage 3 HPV- SCC at BOT
6/14/13 Hemiglossectomy, neck dissection, second surgery to add stitches
6/21/13 PEG
6/23/13 Incision opened to drain infection
6/26/13 Discharged from hospital
7/22/13 IMRT starts