I don't know about the vaccine and my kids yet, but I have no clue how I acquired the virus in the first place. And nobody besides this forum ever mentioned passing it along when they were born. So theoretically my young children have already been exposed? Yikes. I wish the HPV discussion wasn't all about sex, because I think there must be other ways to contract it, and I certainly don't want my kids going through this. I had no idea what a nightmare this could be, and I am only beginning my journey.

Scary stuff. I know my sis has reconsidered her stance on the vaccine. We are not anti-vaccine folks, but I did delay some in my kids due to reactions, and this one is so very new.

Kristen


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery