I am familiar with the Fentanyl patch from after surgery pain - still have a bunch left over. I am however reluctant to start as these patches were involved in my pain medication overdose while admitted previously. Long story short, I was given too many narcotics one night, could not be woken, had an AMET team rushed in to revive me via that scary strong reversing drug Narcan. Anyone who has been "narcanned" will know what I mean, not pretty.
The 3 month theory makes sense altho none of the Drs etc I see have ever mentioned NOT to massage out the stiffness or swelling. Speaking of PT, a fellow patient revealed what worked for her in this regard was Myofascial Therapy where I guess they really stretched out the affected neck tissue.
In other news I did manage to get taped up yesterday so we shall see if this Kinesio thing works. Best I can describe is on the main site (left jaw/cheek) I have a spiders web pattern of tape. Then, on both left and right sides from jawline down to beneath collar bone several strips running up/down. The bottom end of these are then connected by several strips running horizontally. Lastly there are a few strips running up/down from the back of my neck (hairline) to shoulder blade, left side only.
So far it is not uncomfortable just odd looking. Will advise in a few days how it has fared.
Ok, back to the early morning golf on tv, a pleasant benefit of not sleeping so well!
42yr male, Dx jan2013 SCC left tongue stage 3, half glossectomy w/thigh tissue flap and left neck dissection jan/feb, 35 IMRT and 3 cisplatin apr/may, PEG in late March/out early June, pneumonia twice since tx began. No tobacco, HPV-. Now have painful Lymphedema in face/neck...keeping my chins up!
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