To vent, or not to vent. That is the question. Answer?...a healthy little vent:

aaarrgghh, just when I was doing soooo good post tx with toxic spit subsiding, taste buds returning, eating again (PEG out), feeling a bit of energy return, stubbornly following my PT regime (well, mostly!) and looking fwd to continued progress over the summer then...WALLOP! I wake up and welcome the Lord of Lymphedema to my already sore and stiff neck/jawline (from neck dissection/radiation).

So, to backtrack, thanks for all the previous posts on this Lymphedema subject: I am doing the gentle massage and the sleeping at a raised angle. I am aware of the compression garments. My question is have they or anything else not mentioned actually worked for reducing/eradicating this pesky swelling condition? I know there is no cure but hopefully someone has some good tips/advice.

The mighty Cleveland Clinic clearly have not taken this side effect seriously as only now is there some direction/traction among PT/OTs to deal with it. I hope I'm wrong but there seems to be no-one with Head and Neck Lymphedema experience available! Has anyone had any joy with University Hospitals in NE Ohio on this?

As fellow sufferers will know, mornings are absolutely awful...as if dry mouth didn't wake me often enough! Vent over. I shall stay positive and keep my chin(s) up and wish you all a similarly speedy recovery.