Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im very sorry you are going thru another recurrence! I know how upsetting getting that diagnosis can be. Ive gone thru OC 3 times within 3 years. Seemed like everytime I got well I ended up being sick again. I too had clean scans. It can be a very frustrating and discouraging time when you get a recurrence diagnosis. Im here to lean on if it will help you.
It was hard for me to understand what happened with my recurrences. My doc explained it only takes one teeny tiny cell to be missed to cause a recurrence. The CT scans are in 2 cm segments which is roughly the size of a grain of rice. A couple cells could easily be hiding between those cuts of the scan. A 2 cm sized piece of cancerous tumor is very very small and can easily be overlooked.
Since you have been out a few years from rads, you may be a candidate to do IMRT again. It may be a good idea to check out another opinion at a CCC. I did see your treatment facility on the list as CC. Maybe stepping up to a CCC would be something to look into??? Im just throwing that out to you as an option. It always helps to have some options. Since you have been around here a few years, you are probably aware of the assistance with flights and a place to stay for cancer patients seeking out of town treatment facilities. If you need more info please let me know and I will post the links.
Please let me know if you need help updating your signature. Im very good with abbreviations to get everything to fit.
Wishing you all the very best with everything! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |