OP Supporting Member (50+ posts) Joined: Sep 2007 Posts: 60 Likes: 2 | Close to Two months post surgery. They ended up removing front front right and left side of the tongue. They had to remove more due to how large the tumor grew in 3 weeks ( grow 3x larger after the byopsy was done) The edge of the tumor was very close to the jaw again. This time they did not touch the jaw. The finale review was done by the tumor review board, they ruled no chemo or radiation. Just monthly appoints with my doctors. I just need to get use of the skin graft on my lift wrist were skin flap and also the scare to remove the artatary (sp?) for the blood supply. Now have to try to get the new tounge working right so I can get off the feeding tube. The food stuff always make me sick and drained. I have worked up to drinking Monkey Oolong tea with a hint of peach. It taken the super thick mucus and thin it right down. I just hope I can ge eating soon ,it is just strange when I try to eat and have no feelings in the front of the tounge. For me it freaks me out when I cannot feel the food. Time will tell.
Open to any ideas from anyone here with help or suggestion . Thank you
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin TPN feeding for 5 months during treatment and after. Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
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