Welcome Nancy, your husband, including yourself, have had a long journey in a short time. I had tonsil cancer too. Your doctors were very aggressive in treating, which it sometimes takes, but with HPV, it's usually Chemoradiation, being its very responsive, and surgery as a last resort, which I had, but there are number of ways to go about this, and what your doctors chose. In retrospect, this is the type treatment I wish I had.

Erbitux is used, but is not recommended outside clinical trials, until studies are done, and is used for recurrent, metastatic disease, after a platinum drug, like Cisplatin failed, so the gold standard for now is Cisplatin. Some combine Cisplatin with Erbitux, which reportebky had good results, but have also read of disappointing findings in this combination by MSKCC. I had Erbitux and Taxol my last round.

Good luck with your 2nd opinion.

Last edited by PaulB; 06-13-2013 07:44 AM.

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs