We have all been where you are. My husband and I had just adopted 3 children a year and a half before he was diagnosed. Three!!! We aren't what one would consider young, so we were panicking too, regarding the kids.
Try to breathe and stay adamant about your care. Be insistent on them moving quickly for an answer. You are your best advocate and you have to push for what you want. Maybe they can do a core biopsy of one of the lymph nodes before surgery. That is how they verified our scc. Ask about that. Tell them you don't want to wait.
We can tell you to stay calm, but reality is that isn't going to happen until you have the diagnosis of what is causing this, so just hang on tight to your kiddos and hubby and medicate to sleep!! Kidding about the meds...sort of. Please keep in touch with us.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14