I don't have much to add, just to get clearance from your doctor (s). Ask about flying, due to lung involvement, which I'm not familiar with. Do you have medical coverage for out of state, just in case, know where proper care is along your route, with address, telephone, carry extra supplies, dry protein shake mix, water, first aid kit, list of medicines, medicines in the original containers, extra prescriptions for refills, a note from your doctor about medical conditions, peg, etc. Notify accommodations, airlines, transportation, restaurants in advance for any special needs, who should be more than apply to accommodate you. See TSA on-line for further travel info. I haven't traveled in years, so I'm out of the loop with all the new restrictions with flying. Have fun.