Hi,
I have had oral cancer (MEC--low grade) since 1997, but the impact on my life was not too debilitating until this year when I had a glossectomy and laryngectomy. I am currently in Chemo (taxol and carbo-plat) to try and knock the cancer back a bit, since I have mets in lungs and throat, so fatigue is an issue. I am also in palliative care, so I know my time is limited, but I want to make the best use of what I have and I was thinking it would be nice to travel a bit with my husband. Is this crazy? I would love any tips or suggestions about travelling with a PEG, (I can drink liquids but that is about it), and also about coping with how I look (Scarring and a lot of swelling in my face.) Appreciate any advice. Thanks,
Judy


1997 MEC low grade
1 neck node removed--no primary,
stopped monitoring in 2003
(BIG mistake!)
2009 BOT, bilateral lymph
IMRT+Cispl
2011 recurrence, hemi-glossectomy,
margins clear, reclassified hi-grade
2012 recurrence, total G +
laryngectomy,
2013 Mets, now in chemo