Hi, I have had oral cancer (MEC--low grade) since 1997, but the impact on my life was not too debilitating until this year when I had a glossectomy and laryngectomy. I am currently in Chemo (taxol and carbo-plat) to try and knock the cancer back a bit, since I have mets in lungs and throat, so fatigue is an issue. I am also in palliative care, so I know my time is limited, but I want to make the best use of what I have and I was thinking it would be nice to travel a bit with my husband. Is this crazy? I would love any tips or suggestions about travelling with a PEG, (I can drink liquids but that is about it), and also about coping with how I look (Scarring and a lot of swelling in my face.) Appreciate any advice. Thanks, Judy
1997 MEC low grade 1 neck node removed--no primary, stopped monitoring in 2003 (BIG mistake!) 2009 BOT, bilateral lymph IMRT+Cispl 2011 recurrence, hemi-glossectomy, margins clear, reclassified hi-grade 2012 recurrence, total G + laryngectomy, 2013 Mets, now in chemo
|