JD,

It is good to see you at your 2 1/2 year mark! I hope the job thing turns around soon. Have you thought of pursuing Social Security Disability? Just a thought.

Here is a link on L'Hermite's Sign or syndrome::

http://www.themcfox.com/multiple-sclerosis/ms-symptoms/lhermittes-sign.htm

There are many more available. I hear you on the 5% but I think it is much higher. Here is a link that claims it is a side-effect of Cisplatin as well:

http://www.medsafe.govt.nz/Profs/Datasheet/p/PlatinolAqinj.htm

I hope these help you understand more about it. Sometimes I think it feels good but have learned to not look down while walking down stairs as it cause a bit of disorientation.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023