This sounds very familiar as I was there just a short time ago. The last couple of weeks of treatment and the first few weeks of recovery were the worst. I lost a lot of weight and muscle as well and ended up having a PEG put in the last day of treatment.

I've had no issues with it although it's still a strange way to eat. I don't cover mine. The docs said it as long as I kept it clean it was Ok. I shower with it, soap and water to clean around the outside and hydrogen peroxide under the button and around the tube next to my skin. I clean it at least 2-3 times a day.

Your husband sounds like me in that he doesn't want to be fussed over. I hated the fact I wasn't in control (type A).
My partner/caregiver felt helpless at times as you did. The best thing she did for me was let me deal with it and allow me to ask for help when I needed it.

Hang in there! Make sure he's hydrated and takes nourishment. Stay ahead of the nausea and pain and you'll get through it. It's brutal but you'll make it.

Positive thoughts and prayers

"T"