JohnNat
Hello and welcome new cancer friend (I like that phrase!)

Many of us are glad and relieved to hear from a six year survivor! But possible recurrance sucks. And complications aren't too much fun either. And waiting for test results.... and waiting to see if it's cancer...... Argggh! We've all been there, done that.

That's why this site is GREAT and I am sure that you'll enjoy this tremendous resource that wasn't here when you were going through things in 1998.

I was dx'd 13 months ago w/ scc on the tongue. Hemiglossectomy, left side rad dissection, mandible split for surgery and IMRT radiation.

I just started 30 sessions of hyperbaric oxygen (HBO) treatments last week. Trying to heal chronic infection of tissue around the mandible split. I didn't know much about HBO treatments until recently. Some of the mandible damage may be radiation related, also poor healing from the surgery.

I had recurrent leukoplakia (white, red, & extra growth patches on my tongue) prior to scc dx. What terms are they using with the "ulceration" that you've been experiencing?

michelle


History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.