Im so sorry you are in this situation! I cant imagine how difficult this must be for you.

There have been some members (caregivers) who have had to go this route with their patient. Unfortunately anyone who has refused to have treatment has passed away. There isnt much here about that type of thing as OCF works to help patients with survival using scientifically proven medical treatment and recovery. This type of decision is something we arent able to assist you with. Its a very personal choice when a patient refuses treatment due to quality of life issues.

Hospice has people who are specially trained in these matters and can help with the questions Im sure you must have. I would also check with your husbands physician for some guidance. If that individual isnt able to help at least they can point you in the right direction. You probably need not only some guidance regarding your husbands situation but also some support for you as well.

Best wishes!

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile