Hi Kathy, I'm really sorry you have to go through this, and I'm sorry Kevin does too.

Shortly after I finished my first waltz with Madame C, during which I lost my sense of taste entirely just as suddenly as if someone flipped a switch from "Taste" to "No taste;" a friend introduced me to a man who had been through the process 5 years previously.

His friend told me that A) the sense of taste DOES return fully, and B) it took him 5 years for this to happen.

My first recurrence was in my liver (distant metastasis) 17 months later; and although I'd recovered about 40-50% of my ability to taste, Ice Cream was still out for me. What has always puzzled me about this however, is that fact that I was able to enjoy and taste milkshakes made with Ice Cream! Weird, but there it is, and today I still can't eat ice cream.

Another thing is the fact that most chemo will mess with the sense of taste. I don't have a clue as to why, that that's been my observation after my third waltz around the floor (I'm in remission the third time for these past three weeks now.)

Get him a milkshake and if he can't consume it, do it yourself as a reward for being such a great, caring caregiver and spouse!

Last edited by Bart; 04-08-2013 11:20 AM.

My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!