I have been reading posts for the last two months since my recurrence of SCC of the gum tissue on the alveolar ridge and palate (no bone or lymph node involvement). I have yet to see another poster that has the same diagnosis and wondered if there were any others here? I had my 6 week post radiation check-up 2 weeks ago and talked to my surgeon about this and he said what I have/had is very unusual. I have nothing which predisposes me to oral cancer (no smoking, no HPV, only occasional glass of wine, etc.) so we don't know where this came from-which I know is usually the case with cancer. My main concern is future recurrences, and would like to find someone else with my diagnosis to share what their experience has been. In the end, I know none of us really knows, so we live life fully each day, being thankful for the days that we have. But I still feel that information is helpful in being more vigilant fighting this disease. Thank you if anyone else can share their experience with me.


Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection