Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 8 | Brandi, it is hard, I know, to watch a loved one turning into a shadow of his former self and to know that we, as caregivers, have already done everything we can to help. The day I heard that the MO wasn't going to give my husband his third chemo session because he had developed deep vein thrombosis and that his blood counts were all too low anyway, I sat in the waiting room and cried. It felt like I had failed him in some way, when intellectually I knew that it had nothing to do with whether I had put in enough effort. It was probably the worst moment in all of the seven weeks. Then I picked myself up and got back to the care-giving. It is truly like a roller-coaster ride.
Don't forget to look after yourself as you go through the journey with your dad. Exercise -- maybe a bit of walking everyday -- eat and make sure you get adequate sleep. Being physically well with help you deal with the emotional upheaval.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |