Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Pamela! Welcome to OCF! You have found the very best place to get correct medical info about oral cancer. Do yourself a favor and cut back on the googling, it can bring up alot of bad info. At OCF, we are patients and caregivers who have been there and understand exactly what its like. We will also give you moral support to help on those bad days when you need to vent. Some caregivers have said they will cry while taking a shower, maybe that would work for you. As a caregiver its a rough job! I cant imagine watching someone you love with all your heart going thru so much all while keeping a smile on your face and being their advocate. Dont forget to take some time just for you from time to time, even once a week take 2 hours for yourself. You too need a bit of pampering from time to time. Round up friends and relatives, anyone who offered their assistance and take a break once in a while.
Several very important things to make sure to do thru out your husbands treatments. Eating and drinking are the key to getting thru this easier. Every single day make sure he takes in a minimum of 2500 calories and 48 oz of water. Push for even more on a chemo day and the day after to flush those chemicals out of his body. I cant stress the 2500/48 enough! It can be the difference between doing ok or being hospitalized for malnutrition and dehydration. Its really that important, skimping even one day can cause serious issues. Take small sips of water even if it hurts to swallow. He MUST do this daily, several times per day to keep those swallowing muscles active.
There are all kinds of other very important things to do while going thru treatments. There are exercises to do to stretch his mouth open. Rinsing with salt/baking soda/water combo several times per day. Using flouride trays daily for his teeth. Using thick cream on his skin where it turns red. ETC..... Too many small things which will come up as you go along.
Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |