Hi,
Just wanted to say we know where you are and how scary it is, but you are on your way to acceptanceand fighting mode and that is what it takes.
I don't know if they have mentioned HPV to you, but it sounds as though they will find this is HPV+, which is a better scenario, if there can be such a thing.
If they are going to use Cistplatin on your husband, be sure to have a baseline hearing test, as was earlier suggested. My husband is now borderline needing hearing aides at this point. But, we are 1.5 years out from tx now.
Hang in there, ask lots of questions, know we are here for you and make him eat anything and everything right now because soon things will never taste the same, and he WILL lose weight. Please keep in touch with us and know you can personal message any of us.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14