Hi everyone,
I wanted to give you a quick update on my mom's health.

My mom had her surgery on Tuesday the 12th at UC Irvine. The surgery was 10 hours where she had a mandibulectomy along with a flap reconstruction surgery. They were able to preserve her lower lip which was a good thing. The OR nurse told us that the surgeons were surprised by the depth of her cancer and had to remove a small portion of the base of her tongue as well. She also had a tracheostomy and a feeding tube placed. There was some clotting issues with the flap and there was another 4 hour surgery on Wednesday.

She is recovering well despite everything and she was finally transferred out of surgical ICU last night. The swelling is going down the skin is looking good. She was able to sit up for two hours the last couple of days. Today, they were going to try and wheel her around the hospital. They removed most of the drainage as well.

The resident today mentioned that she may be discharged from the hospital by Friday (the 22nd). I'm worried. What do I do? I started looking into sub-acute skilled nursing facilities but there are far and few options that are sub-acute and accept Medicare. I'm trying not to freak out but it's just me living here. My aunt few back home. The facilities that I did see where awful. Quality appeared sub-par as best and most patients looked comatose. I'm worried about leaving my mom there and she can't speak so it is hard for me to check on her as frequently as I'd like. I notice nurses making mistakes at her bedside within the ICU, I can't imagine what the risks are at these facilities that I've seen.

Anyone living in Orange County, CA have recommendations for people to contact about finding a sub-acute care facility that accepts medicare? Or, what are my alternatives to transferring her to a nursing facility (outside of me quitting my job and dropping out of school). Given that I have no other means of income or support, I don't think that is our best option.

I'm worried, scared, and overwhelmed. I'm so busy keeping it together all the time because I have to that I haven't even had a chance to feel anything... and I just end up feeling very angry. I feel like a robot - it's just been go go go.




Nay, daughter/caregiver to:
Mom (65 yrs), non-drinker, non-smoker
Mandibulectomy+flap reconstruct: 3/12/2013
Biopsy+CT/PET: April/Sept 2012+Mar/2013
Dx: SCC in the jaw - Stage IV a
Tx: 3 cycles TPF chemo (last cycle ended 1/28/13)
- soft foods diet, hospitalized 2x, jaw bone disintegrated