Charm,

That study requires HPV positive diagnosis. I did not have HPV.

I have been following your posts and was suprised at the level of pain and side effects you are experiencing this time around. I am currently on a constant regime of pain meds due to the combined effects of the ulcer neer the tonsil, severe fibrosis and nerve damage in the jaw.

Adding to that (even if its curative) may just make life intolerable. If I thought it would deminish over time I would be very open to a new round of radfiation but I fear I might go over a tipping point into a living hell of permanent pain and necrosis.

I talked with the doctor doing the viral study on Friday and hope to hear from the RO and MO early next week. I am also reading up on all the suggestions I am getting here. I am trying to narrow them down but that is hard as each shows some promise.

I'll keep you posted.