Just for others to know, you can stay alone at Hope Lodge, but need a letter from your doctor or qualified health practioner saying you are able to care for yourself. I use neurontin, gabapentin, then lyrica, pregabalin, but more for the neuropathy in the legs, feet, which with some, is not helpful. Some vitamins may help, at least for neuropathy. Also acupuncture, acupressure, mayofacial massage, electrical stimulation, cold compress, avoiding any activities than cause episodic pain or triggers, but check with your doctors. and it's still eatly in the recovery phase. The hospital should have pain or palliative care management that can help. Glad you have a caretaker.

The pain near the ear should lessen, resolve, when the tumor shrinks from radiation, and chemo.

Last edited by PaulB; 03-10-2013 11:19 AM. Reason: Pain

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs