Hi Paul,

Actually, DonFoo recommended this site to me wink I know him from the CSN site. I've done quite a bit of browsing and reading here and there's a lot of great info and posts. As far as the disappearing primary, it kind of fits my MO. If there's a small percentage it will happen, it probably will happen to me ~lol~ 1-2% Unknown primary...1% chance of post operative bleeding 11 days out... yep that's me! I'm hoping it's a trend that has run it's course.

Yes, I had two lymph nodes on the same side of my neck removed with 24 additional lymph nodes. Both tumors were 5+cm. You're correct in the location of the first tumor. The second was in the posterior triangle area just below my ear. Prior to the surgery, the tumors were clearly visible and were beginning to cause discomfort. They were "aggressive" according to my surgeon and had intertwined themselves in the muscles, nerves and blood vessels in my neck. It was delicate and complicated surgery and I'm still feeling the effects of the nerve trauma/damage.

I'll be staying in Baltimore and getting treatment at JH. Lodging has been taken care of by the Cancer Society's Hope Lodge. I started in Winchester but didn't have the greatest experience with the doctors there. Johns Hopkins is #1 in the country for H&N cancer and I have full confidence in my team. The entire organization has been amazing through everything thus far.

Thanks for the reply! I appreciate it!

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since