Thanks Paul, I'll add that to the list to talk to doc about. V is 7 months out.

On a side note, in an effort to help the saliva along, he had his first acupuncture today, used a place recommended by his onc. I know it's a small gun and only half of folks find it useful, but it it works, will be worth it. He also started speech therapy last week, having some stiffness issues with both the BOT and the valve that closes the air pipe when he eats. Radiation, the gift that keeps giving. That said, he knows darn good and well how lucky he is, how well he's come through this!


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED