V had his swallow study today and saw the speech path, Rad Onc & ENT. Swallow study revealed a rigidity in the flap that closes over his windpipe, explaining some swallowing issues he's been having. They prescribed some more exercises and some PT.

Re: spot on his tongue. Both Rad Onc & ENT had a good look at it. Apparently, it's more of a thin spot than a sore, no open canker. It also appears to be rubbing on a tooth. They expect it will improve, just will take time. They prescribed Salagen to help with saliva production. He'll take it and see if it helps without creating bad side affects. (i.e. lots of sweat). That's it in a nutshell. Thank you for the advice today.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED