Thanks! No, he is not at a ccc. He has never had a "medical team". He is passive and doesn't ask questions, etc... I have begged him to get 2nd opinions since 2011 when the cancer recurred. He had TORS + bilateral neck dissection in 2008 but he had a amazing surgeon and that cancer never came back. I have never liked his ONC, ENT or Radiologist as they are always unavailable and never follow through. I have had to confront them on several occasions because of their lack of communication. I did read Kelly's post and replied but will also PM her. I'd like to know what options her brother is considering.


Caregiver to SO, Ari-52 yrs.
6/2008:Stage IV SCC BOT+MET neck HPV +
8/2008:TX TORS+RND+RAD+PEG
6/2011:Stage IV Laryngeal TX chemo+RAD
he had 2 Rec to nodes in neck RX RAD
6/2012:Total Laryngectomy
9/2012: DX Hypopharyngeal cancer stage IV TX 3 Chemo,Erbitux
3/2013: MET LUNGS begins trial 3/11/13