| | Joined: Feb 2013 Posts: 8 Member | | Member Joined: Feb 2013 Posts: 8 | So today I met with the ENT to discuss follow up treatment for my PLGA. I already knew what to expect, that it needs more surgery, but I was curious what, if any tests they would run.
First of all, I wasn't thrilled with the ENT. He and his assistant seemed too fascinated with a zit I had on my chin, I mean, really, it's acne! I had to reassure them several times that it appeared overnight and I'm positive it's JUST A ZIT! Not more cancer, seriously. They stared at me like I was a medical oddity and while he held the report in his hand-- the same report the oral surgeon gave me-- he didn't seem to know the specifics of what was going on. He asked me how big the tumor was and when I had the surgery to remove it. I just felt zero confidence. He discussed the surgery and that I would need a skin graft inside my mouth, which could be taken from my arm or they could use alloDerm. I ended up asking if I would need any tests. So he decided that a PET and CT scan were in order.
So I've been crying and freaking out all day, honestly it's not that big of a deal, but alot is going on right now like my dad being admitted to the hospital after his second round of Chemo. But my husband and I decided we would feel alot better with a second opinion (not so much opinion, just someone else to talk to and inspire confidence in us) and maybe just the CT scan and surgery, and I feel uncomfortable with the idea of the alloDerm, would prefer my own skin even if it means another wound. I feel like time is of the essence, but I feel better for cancelling tomorrows tests.
What is everyone else's experience with all this? Am I just overreacting? Am I being foolish to wait another week to get things done? I don't know how to feel besides overwhelmed. I know it could be much worse.
Age 30, mom to 2 little boys Small tumor in right cheek removed 1/23/13 DX PLGA 2/15/13 Appointment with ENT 2/26 PET scan clear Surgery for wide excision w/ skin graft scheduled for 3/28
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Entire Thread
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PET/CT, Surgery, and 2nd Opinions
| bluejay82 | 02-26-2013 11:57 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| ChristineB | 02-27-2013 12:44 AM |
Re: PET/CT, Surgery, and 2nd Opinions
| Cheryld | 02-27-2013 04:34 AM |
Re: PET/CT, Surgery, and 2nd Opinions
| PaulB | 02-27-2013 01:37 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| bluejay82 | 02-27-2013 05:06 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| Cheryld | 03-01-2013 02:38 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| bluejay82 | 03-15-2013 07:27 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| Cheryld | 03-16-2013 12:24 AM |
Re: PET/CT, Surgery, and 2nd Opinions
| gpk101 | 03-16-2013 04:08 AM |
Re: PET/CT, Surgery, and 2nd Opinions
| Cheryld | 03-16-2013 04:13 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| tina77 | 03-17-2013 02:56 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| Ingrid K | 03-17-2013 08:50 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| bluejay82 | 03-18-2013 10:28 PM |
Re: PET/CT, Surgery, and 2nd Opinions
| Cheryld | 03-18-2013 11:25 PM | |
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