I completely agree with what Uptown said. The head, neck and mouth exercises are so important throughout treatment, and especially after treatment, in order to maintain mobility. The real scaring starts as soon as treatment stops. I'd get to work with a speech therapist at your oncology center to get a full range of daily exercises going, otherwise your range of motion will likely get worse.

This is one of those areas that caregivers can help out, remind our loved ones. My husband came through treatment very well, did the exercises, slacked off and started to pay the price. I really got on him, reminding him we didn't go through all of this for him to lose the ability to open his mouth wide enough to properly eat food. The role of bad cop does not end with the last day of treatment.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED