 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hockeydad,
You should have a series of neck stretches to do for life and often AFTER PT. fo us on the scalenes as they cause the most referred pain and can cause pain even in your feet. Stick with a PT that works with radiated tissue first then find a Chiropractor that specializes in Active Release Technique for best results. Massage and such should be from now n as well for best comfort.
Unfortunately your jaw pain is from the radiation too and may or may not improve. Likewise thyroid and other things that got radiation need t be watched which your team should know. One trick is to find a group of doctors to manage the symptoms after the 5 year mark. In my case that magic number seemed to signal less overview afterwards. Just my opinion. Non-cancer type of docs were always hesitant to get involved post treatment as well.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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