So glad to hear you are coping. Induction chemo can be very hard. Alex used to say that there was no word in the English language that could describe what he felt but fatigue was just so inadequate. If you have got through the first 5 days, then hopefully you are on the improve till the next dose. Alex used to be very very sick half way through the first week, start improving during the second and approached feeling "normal" during the third.

Alex also discovered an added bonus of chemo day in that he was properly hydrated on those days because of the cisplatin which made him feel quite well (albeit short lived). We learned the value of hydration very early as a result. Unfortunately, getting the idea of nutrition through to Alex was a bit more problematic. Alex got very, very sick and I would implore you to keep both hydration and nutrition up as difficult (and some days impossible) as it may feel.

Just a thought re the 5FU pack: Alex refused to have anything to do with the fanny pack (a cute (I thought) little denim number made by the volunteer group). He coped better with fleecy lined track pants (?sweat pants) with side pockets. the cassette sat neatly and snugly in the pocket. Having the cassette to the side made it easier to sit and lie down, Alex said, and didn't get in the way so much.

KLO


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight