She'll,

First, I am sorry everyone here calmed you down long enough for your doctor to totally freak you out. One of the grounding forces in our lives besides each other of course, is the calming influence of our docs. They tend to remind us that the million things our minds conjure up put so much stress on us. Disregard the months counted off, the additional scary comments and all that. Until they can prove it, worry not because until that moment you don't have cancer. Don't hurry the worry please. If it is...it will be known in due time. You are doing all you can and worry does not help.

I have had swallow problems for 9 1 1/2 years and just roll with it. I cough up a mouthful of goo that started at every 15 minutes and is now every 15 seconds. I have lumps, bumps, swellings and all that goes with this but refuse to accept anything unless they can prove it.

Enjoy every second right now. Your life has changed for good once you get that life shaking diagnosis we all have. It may continue to change forever or it may stabilize. Enjoy the moment and MAKE THE MEMORIES. Some day will come for all of us when that is what carries us through the toughest of times.

Get with a speech pathologist and get some swallowing recommendations. That is what they do.

Best wishes for the best possible course of action for you and your medical team. Enjoy life today. The rest will sort out.

Ed

Last edited by Uptown; 01-12-2013 07:16 AM.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023